1300 Pennsylvania Avenue NW
Washington, DC 20004

Rare Disease Week Agenda Overview
(February 24 – 26, 2026)

• Tuesday, February 24th:

  • Share Your Story Day

  • Welcome Reception

  • Community Meetups (Young Adult Rare Representatives (YARR), RDLA Advisory Committee, Community Scholarships)

• Wednesday, February 25th:

  • Legislative Conference

  • Rare Artist Gallery

• Thursday, February 26th:

  • Hill Meetings with Members of Congress

  • Rare Disease Congressional Caucus Briefing

  • Closing Reception