Upcoming Events
*
Upcoming Events *
January 29-30, 2025
Thursday 6PM-9PM
Friday 8AM-5PM
ARIZONA STATE UNIVERSITY
UPDATES IN AMYLOIDOSIS
Health Futures Center
6161 E. Mayo Blvd. 1st Floor
Phoenix, AZ 85054
February 21, 2026
Saturday
11:30 am - 2:30 PM
Come join us at:
Cardiometabolic Health Exposition
Bayer YMCA
5555 Page Blvd.
St. Louis, MO 63112
February 24-26, 2026
1300 Pennsylvania Avenue NW
Washington, DC 20004
Rare Disease Week Agenda Overview
(February 24 – 26, 2026)
Tuesday, February 24th:
Share Your Story Day
Welcome Reception
Community Meetups (Young Adult Rare Representatives (YARR), RDLA Advisory Committee, Community Scholarships)
Wednesday, February 25th:
Legislative Conference
Rare Artist Gallery
Thursday, February 26th:
Hill Meetings with Members of Congress
Rare Disease Congressional Caucus Briefing
Closing Reception
February 28, 2026
CARDIAC AMYLOIDOSIS:
The Hidden Heart Disease
1:00 PM to 4:00 PM Saturday
FREE LUNCH & LEARN
Presented BY:
University United Methodist Church
Black Nurse's Association Inc. of Indianapolis
University United Methodist Church
5959 Grandview Road
Indianapolis IN 46228
Saturday March 14, 2026
PRESENTING
1:00 PM to 3:45 PM EST
AMERICAN SOCIETY OF NUCLEAR CARDIOLOGY
Masterclass in Cardiac Amyloidosis: Disease Spectrum, Diagnosis and Management
April 25, 2026
Mississippi Sickle Cell Foundation
5th Annual Walk/Health Fair
Sickle Cell and Amyloidosis Awareness
9:00 AM Saturday 4/25/26
West Tallahatchie High School
2104 High School Road
Webb, Mississippi 38966
May 2, 2026
Saturday
10:00 AM to 2:00 PM
Come learn about Amyloidosis and get the local resources you need. Free presentation at this event.
Second Annual Senior Day Party
Presented by:
Kansas City Councilman Darrell Curls
Grace Baptist Church
8524 Blue Ridge Blvd.
Kansas City, MO 64138
